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Table 4 Deletion of CBQ-HF items based on caregiver feedback in first set of cognitive interviews

From: The Caregiver Burden Questionnaire for Heart Failure (CBQ-HF): face and content validity

Items deleted following set 1 of cognitive debriefing interviews (n = 9 caregivers)
Item Number of caregivers who did not find the item relevant (or other rationale for deletion) Example quote to support deletion
How much has caregiving made you feel angry? 5/9 (plus conceptual overlap with the item dedicated on frustration) “I felt frustrated but not angry” (03–02)
How much has caregiving made you feel like you can’t cope? 6/9 (plus conceptual overlap with the item ‘how much has caregiving made you feel helpless’) “I’m used to all -this. It’s nothing new, you know?” (03–08)
How uneasy have you felt while carrying out a personal care task for the person you care? 9/9 I’m not feeling uneasy, because that’s something that I would do for him anyways” (03–05)
How much has caregiving caused problems in your relationship with your partner and family? 5/9 (plus conceptual overlap with item on the amount of time spent with the patient) “I don’t know how to answer that. It’s like part of all the other questions,” (03–08)
How much has caregiving caused problems in your relationships with friends? 6/9 (plus caregivers found the item too broad) “My friends are very understanding. So I would say not at all. I think that they understand where I'm at.” (03–06)
How much has caregiving made it difficult to date? 6/9 “I did not date for other reasons, because I’m married - so I don’t go on dates.” (03–02)
How much has caregiving caused problems with your sex life? 5/9 (reported sex life difficulties a result of other illnesses, work, partner’s mood) Because there really isn’t any. Due to his medication, due to his back problems. That makes it very difficult for him.” (03–07)
How much has caregiving limited time spent doing things for yourself? 4/9 (plus conceptual overlap with ‘how much have you felt like you had enough time for yourself?’ and ‘how much has caregiving made you feel unable to do the things you want to do?’. not at all because I am able to do the things - may not just be when I want to do it” (04–08)