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Table 1 Demographic and clinical characteristics of sample (n = 185)

From: Do generic utility measures capture what is important to the quality of life of people with multiple sclerosis?

Characteristics

Mean (SD) or N (%)

Age (y)

42.8 (10.0)

Women/Men

137/48 (74/26)

Definite MS/CIS

170/15 (92/8)

Year since diagnosis

6.2 (3.6)

EDSS, median (IQR)

2.0 (1.0 - 3.5)

On DMT/Not on DMT/No information

110/19/56 (59/10/30)

Patient Generated Index*

0.50 (0.25)

EQ-5D**

0.69 (0.18)

SF-6D***

0.69 (0.13)

  1. SD, standard deviation; N, number; CIS, Clinically Isolated Syndrome; EDSS, Expanded Disability Status Scale; IQR, Inter-quartile range; DMT, Disease Modifying Therapies.
  2. *Transformed to a scale from 0 to 1, higher scores are better (1 = perfect QOL).
  3. **Measured on a scale from −0.4 to 1, higher scores are better (1 = perfect health).
  4. ***Measured on a scale from 0.3 to 1, higher scores are better (1 = perfect health).
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Health and Quality of Life Outcomes

ISSN: 1477-7525

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