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Table 1 Demographic and clinical characteristics of sample (n = 185)

From: Do generic utility measures capture what is important to the quality of life of people with multiple sclerosis?

Characteristics Mean (SD) or N (%)
Age (y) 42.8 (10.0)
Women/Men 137/48 (74/26)
Definite MS/CIS 170/15 (92/8)
Year since diagnosis 6.2 (3.6)
EDSS, median (IQR) 2.0 (1.0 - 3.5)
On DMT/Not on DMT/No information 110/19/56 (59/10/30)
Patient Generated Index* 0.50 (0.25)
EQ-5D** 0.69 (0.18)
SF-6D*** 0.69 (0.13)
  1. SD, standard deviation; N, number; CIS, Clinically Isolated Syndrome; EDSS, Expanded Disability Status Scale; IQR, Inter-quartile range; DMT, Disease Modifying Therapies.
  2. *Transformed to a scale from 0 to 1, higher scores are better (1 = perfect QOL).
  3. **Measured on a scale from −0.4 to 1, higher scores are better (1 = perfect health).
  4. ***Measured on a scale from 0.3 to 1, higher scores are better (1 = perfect health).