Table 3 Demographic data by quartiles of PQoL total score (ULQIE; N = 89)
From: Quality of life among parents of children with phenylketonuria (PKU)
Quartiles of PQoL: ULQIE total score (0-100) | <Q.25(M= 47.9; SD=6.6; n=22) | Q.25- Q.50(M= 63.1; SD=2.8; n=22) | Q.50- Q.75(M= 72.5; SD=2.7; n=21) | >Q.75(M= 84.2; SD=4.2; n=24) | |
|---|---|---|---|---|---|
Gender | |||||
of caregivers | Male | 0 | 6 (27.3%) | 4 (19.1%) | 3 (12.5%) |
Female | 22 (100%) | 16 (72.7%) | 17 (80.9%) | 21 (87.5%) | |
of children | Female | 13 (59.1%) | 15 (68.2%) | 7 (33.3%) | 12 (50%) |
Male | 9 (40.9%) | 7 (31.8%) | 14 (66.7%) | 12 (50%) | |
Age (years) | |||||
of caregiver | Mean | 35.9 | 38.7 | 40.9 | 40.3 |
SD | 4.7 | 8.2 | 7.7 | 6.3 | |
Range | 27-45 | 22-54 | 30-59 | 29-56 | |
of children | Mean | 6.5 | 8.2 | 10.5 | 10.6 |
SD | 4.6 | 6.2 | 5.0 | 4.0 | |
Range | 1.2-15.5 | 1.4-19.2 | 0.8-18.3 | 3.8-17.7 | |
Ethnicity | Caucasian | 22 (100%) | 22 (100%) | 20 (95.2%) | 24 (100%) |
caregivers | others | 0 | 0 | 1 (4.8%) | 0 |
Marital status | Married | 20 (90.9%) | 17 (77.3%) | 19 (90.5%) | 22 (91.6%) |
Divorced/single | 2 (9.1%) | 5 (22.7%) | 2 (9.5%) | 2 (8.4%) | |
Employment | employed | 14(63.6%) | 17 (77.3%) | 19 (90.5%) | 16 (66.7%) |
status of caregiver | unemployed | 8 (36.4%) | 5 (22.7%) | 2 (9.5%) | 8 (33.3%) |
Education of caregiver | Lower secondary school/ secondary school (8-10 years) | 15 (68.2%) | 14 (63.6%) | 13 (61.9%) | 15 (62.5%) |
General qualification for university entrance/ university diploma (>10 years) | 7 (31.8%) | 8 (36.4%) | 8 (28.1%) | 9 (27.5%) |