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Table 3 Demographic data by quartiles of PQoL total score (ULQIE; N= 89)

From: Quality of life among parents of children with phenylketonuria (PKU)

Quartiles of PQoL: ULQIE total score (0-100)   <Q.25(M= 47.9; SD=6.6; n=22) Q.25- Q.50(M= 63.1; SD=2.8; n=22) Q.50- Q.75(M= 72.5; SD=2.7; n=21) >Q.75(M= 84.2; SD=4.2; n=24)
Gender      
of caregivers Male 0 6 (27.3%) 4 (19.1%) 3 (12.5%)
Female 22 (100%) 16 (72.7%) 17 (80.9%) 21 (87.5%)
of children Female 13 (59.1%) 15 (68.2%) 7 (33.3%) 12 (50%)
Male 9 (40.9%) 7 (31.8%) 14 (66.7%) 12 (50%)
Age (years)      
of caregiver Mean 35.9 38.7 40.9 40.3
SD 4.7 8.2 7.7 6.3
Range 27-45 22-54 30-59 29-56
of children Mean 6.5 8.2 10.5 10.6
SD 4.6 6.2 5.0 4.0
Range 1.2-15.5 1.4-19.2 0.8-18.3 3.8-17.7
Ethnicity Caucasian 22 (100%) 22 (100%) 20 (95.2%) 24 (100%)
caregivers others 0 0 1 (4.8%) 0
Marital status Married 20 (90.9%) 17 (77.3%) 19 (90.5%) 22 (91.6%)
Divorced/single 2 (9.1%) 5 (22.7%) 2 (9.5%) 2 (8.4%)
Employment employed 14(63.6%) 17 (77.3%) 19 (90.5%) 16 (66.7%)
status of caregiver unemployed 8 (36.4%) 5 (22.7%) 2 (9.5%) 8 (33.3%)
Education of caregiver Lower secondary school/ secondary school (8-10 years) 15 (68.2%) 14 (63.6%) 13 (61.9%) 15 (62.5%)
  General qualification for university entrance/ university diploma (>10 years) 7 (31.8%) 8 (36.4%) 8 (28.1%) 9 (27.5%)