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Table 2 Means and standard deviations of PQoL scores (ULQIE; N= 89)

From: Quality of life among parents of children with phenylketonuria (PKU)

Scale Item example (‘In the last 7 days…’) Total sample (N = 89)
   Mean (SD) Range Quartile
Physical and daily functioning ‘I felt fit/healthy.’ 67.6 (17.2) 3.6-96.4 Q .25  = 57
Satisfaction with family ‘I felt comfortable in my family.’ 75.8 (16.9) 20.9-100.0 Q .25 = 67
Emotional stabilty ‘I felt burdened due to the illness of my child.’ 66.9 (19.8) 12.5-100.0 Q .25  = 50
Self-development ‘I was able to realize wishes and needs.’ 52.7 (22.3) 0.0-93.8 Q .25  = 34
Well-being ‘I was active and full of energy.’ 73.6 (17.1) 25.0-100.0 Q .25  = 63
Total score   67.3 (14.2) 34.4-92 Q .25  = 59
  1. Note. ULQIE-scales were linearly transformed into scales from 0 to 100, where higher scores indicate better QoL, ANOVA revealed no significant differences in means between mothers and fathers (p > 0.05). In the table only the Q .25 is listed because the “lowest” quartile was regarded as having impairments in PQoL.