Quality of life among parents of children with phenylketonuria (PKU)

Table 2 Means and standard deviations of PQoL scores (ULQIE; N = 89)

Scale	Item example (‘In the last 7 days…’)	Total sample (N = 89)
		Mean (SD)	Range	Quartile
Physical and daily functioning	‘I felt fit/healthy.’	67.6 (17.2)	3.6-96.4	Q _.25 = 57
Satisfaction with family	‘I felt comfortable in my family.’	75.8 (16.9)	20.9-100.0	Q _.25 = 67
Emotional stabilty	‘I felt burdened due to the illness of my child.’	66.9 (19.8)	12.5-100.0	Q _.25 = 50
Self-development	‘I was able to realize wishes and needs.’	52.7 (22.3)	0.0-93.8	Q _.25 = 34
Well-being	‘I was active and full of energy.’	73.6 (17.1)	25.0-100.0	Q _.25 = 63
Total score		67.3 (14.2)	34.4-92	Q _.25 = 59

Note. ULQIE-scales were linearly transformed into scales from 0 to 100, where higher scores indicate better QoL, ANOVA revealed no significant differences in means between mothers and fathers (p > 0.05). In the table only the Q _.25 is listed because the “lowest” quartile was regarded as having impairments in PQoL.

ISSN: 1477-7525