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Table 2 PROMIS pediatric nephrotic syndrome cohort

From: Gaining the PROMIS perspective from children with nephrotic syndrome: a Midwest pediatric nephrology consortium study

Child demographics N = 151
  n (%)
Male 79 (52.2)
Age (yrs)  
 8-12 62 (41.1)
 13-17 89 (58.9)
Race  
 White 74 (49.0)
 Black 53 (35.1)
 Asian 9 (5.9)
 Other, Multiple Races 14 (9.3)
Ethnicity  
 Non-Hispanic 141 (93.4)
 Hispanic 9 (5.9)
Edema Status  
 None 96 (63.6)
 Mild/moderate 32 (21.2)
 Severe 21 (13.9)
eGFR (n), Mean, (SD)** (n = 144), 95 (47)
Co-Existing conditions (#)  
 None 86 (56.9)
 One 43 (28.5)
  ≥ Two 22 (14.6)
Co-Existing conditions:***  
 Asthma 17 (11.2)
 ADD/ADHD 12 (7.9)
 Mental Disorders 11 (7.3)
 Overweight 14 (9.3)
 Premature birth 14 (9.3)
 Rheumatic disease 8 (5.3)
Hospitalization history  
 Yes 54 (35.7)
Surgical History  
 Yes 43 (28.5)
# of daily medications, Mean(SD)) 4.4 (3.4)
Steroid Therapy  
 None 74 (49.0)
 Alternating day 28 (18.6)
 Daily or more than once/day 47(31.1)
Guardian Demographics  
Relationship to Child  
 Parent 138 (91.4)
 Grandparent 5 (3.3)
 Guardian or Other 7 (4.6)
Education Level  
  < High school 15 (9.9)
 High school degree/GED 38 (25.2)
 Some college/technical degree 55 (36.4)
 College degree or more 42 (27.8)
  1. ** eGFR = estimated glomerular filtration rate.
  2. *** Parents reported more than 1 condition; many other conditions in lower frequency (<3%) than listed conditions.