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Table 2 PROMIS pediatric nephrotic syndrome cohort

From: Gaining the PROMIS perspective from children with nephrotic syndrome: a Midwest pediatric nephrology consortium study

Child demographics

N = 151

 

n (%)

Male

79 (52.2)

Age (yrs)

 

 8-12

62 (41.1)

 13-17

89 (58.9)

Race

 

 White

74 (49.0)

 Black

53 (35.1)

 Asian

9 (5.9)

 Other, Multiple Races

14 (9.3)

Ethnicity

 

 Non-Hispanic

141 (93.4)

 Hispanic

9 (5.9)

Edema Status

 

 None

96 (63.6)

 Mild/moderate

32 (21.2)

 Severe

21 (13.9)

eGFR (n), Mean, (SD)**

(n = 144), 95 (47)

Co-Existing conditions (#)

 

 None

86 (56.9)

 One

43 (28.5)

  ≥ Two

22 (14.6)

Co-Existing conditions:***

 

 Asthma

17 (11.2)

 ADD/ADHD

12 (7.9)

 Mental Disorders

11 (7.3)

 Overweight

14 (9.3)

 Premature birth

14 (9.3)

 Rheumatic disease

8 (5.3)

Hospitalization history

 

 Yes

54 (35.7)

Surgical History

 

 Yes

43 (28.5)

# of daily medications, Mean(SD))

4.4 (3.4)

Steroid Therapy

 

 None

74 (49.0)

 Alternating day

28 (18.6)

 Daily or more than once/day

47(31.1)

Guardian Demographics

 

Relationship to Child

 

 Parent

138 (91.4)

 Grandparent

5 (3.3)

 Guardian or Other

7 (4.6)

Education Level

 

  < High school

15 (9.9)

 High school degree/GED

38 (25.2)

 Some college/technical degree

55 (36.4)

 College degree or more

42 (27.8)

  1. ** eGFR = estimated glomerular filtration rate.
  2. *** Parents reported more than 1 condition; many other conditions in lower frequency (<3%) than listed conditions.