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Table 1 Questionnaire response and patient demographics
| Group 1 – stopped tx before adulthood | Group 2 – continued tx from childhood into adulthood | Group 3 – started tx in adulthood | |
|---|---|---|---|
| Questionnaire Response | |||
| Number of Questionnaires Sent | 50 | 50 | 50 |
| Number of Questionnaires Returned | 47 | 41 | 45 |
| % Response Rate | 94 (47/50) | 82 (41/50) | 90 (45/50) |
| Number of Returned Questionnaires in which GP confirmed that patients met criteria of the cohort (Valid Questionnaires) | 44 | 37 | 33 |
| Number of GPs sent questionnaires | 40 | 38 | 43 |
| Number of GPs who returned questionnaires | 38 | 31 | 39 |
| Patient Demographics | (n = 44) | (n = 37) | (n = 33) |
| Gender (male,%) | 39 (88.6) | 36 (97.3) | 25 (75.8) |
| Mean Age (years) at Diagnosis for Males (SD) | 9.4 (±3.0) | 10.4 (±3.4) | 28.7 (±9.6) 10.4 |
| Mean Age (years) at Diagnosis for Females (SD) | 12.0 (±1.4) | 9* | 31.0 (±5.7) |
| Mean Age (years) at time of data collection for Males (SD) | 20.0 (±1.3) | 20.6 (±1.2) | 36.7 (±10.4) |
| Mean Age (years) at time of data collection for Females (SD) | 20.5 (±1.1) | 19.4* | 38.9 (±11.2) |
| Diagnosis made by | |||
| Psychiatrist (N) | 30 | 25 | 27 |
| Paediatrician (N) | 11 | 7 | 0 |
| Unknown by GP (N) | 3 | 5 | 3 |
| Other (N) | 0 | 0 | 3 |
