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Table 1 Baseline PKU-QOL total score and sub-score characteristics

From: Longitudinal quality of life analysis in a phenylketonuria cohort provided sapropterin dihydrochloride

    

QOL Scoring

 

Mean ± SD

Range

n scores > mid-score

Min-Max

Mid-score

Scoring total (n = 34)

206 ± 29

109 to 246

32

51-255

153

Impact (n = 35)

71 ± 11

31 to 85

32

18-90

54

Worries (n = 35)

44 ± 8

13 to 50

33

10-50

30

Satisfaction (n = 35)

30 ± 7

15 to 40

26

8-40

24

Support (n = 34)

18 ± 3

10 to 20

30

4-20

12

General well-being (n = 34)

44 ± 8

30 to 54

29

11-55

33

  1. n is the number of returned questionnaires with completed sections at baseline.
  2. Minimum score: Lowest score possible if all answers in section scored a 1. Maximum score: Highest score possible if all answers in section scored a 5. Mid-score: If all answers in a section scored a 3.
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Health and Quality of Life Outcomes

ISSN: 1477-7525

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