Table 1 Demographic and clinical features of the sample: comparison between age groups
Features | All cases (%) | Age groups | p | |
|---|---|---|---|---|
10-13 years (n = 63) | 14-18 years (n = 77) | |||
Gender | ||||
Males | 30 (21.4) | 12 (19.1) | 18 (23.4) | 0.53 |
Females | 110 (78.6) | 51 (80.9) | 59 (76.6) | |
Age at diagnosis | ||||
0-6 years | 64 (45.7) | 33 (52.4) | 31 (40.3) | 0.15 |
≥ 7 years | 76 (54.3) | 30 (47.6) | 46 (59.7) | |
Symptoms* | ||||
Symptomatic | 39 (27.9) | 22 (37.9) | 17 (22.7) | 0.06 |
Asymptomatic | 94 (67.1) | 36 (62.1) | 58 (77.3) | |
Compliance | ||||
Strict | 122 (87.1) | 60 (95.2) | 62 (80.5) | 0.02 |
A little/none | 18 (12.9) | 3 (4.8) | 15 (19.5) | |
Difficulty in compliance | ||||
A lot | 16 (11.4) | 9 (14.3) | 7 (9.1) | 0.01 |
Somewhat | 27 (19.3) | 8 (12.7) | 19 (24.7) | |
A little | 58 (41.4) | 21 (33.3) | 37 (48.0) | |
None | 39 (27.9) | 25 (39.7) | 14 (18.2) | |
Duration of disease | ||||
0-3.5 years | 40 (28.6) | 22 (34.9) | 18 (23.4) | 0.31 |
3.6-8 years | 47 (33.6) | 20 (31.8) | 27 (35.1) | |
8.1-18 years | 53 (37.8) | 21 (33.3) | 32 (41.5) | |
Previous misdiagnoses | ||||
Yes | 50 (35.7) | 14 (22.2) | 36 (46.7) | < 0.001 |
No | 90 (64.3) | 49 (77.8) | 41 (53.3) | |
Delay in making the diagnosis** | ||||
0-12 months | 81 (57.9) | 33 (64.7) | 48 (67.61) | 0.74 |
≥ 13 months | 41 (29.3) | 18 (35.3) | 23 (32.39) | |