Table 2 Resource utilisation questions, to be answered by patients/caregivers and the home care nurse*

A) Questions for the patient to be answered after the first infusion (administered at the hospital).

1. How long did the whole process take, from the time you arrived to the hospital until the time you left the hospital?

Hours: Minutes:

2a. How long did the whole process take, from the time you left home until the time you got back home again?

Hours: Minutes:

2b. How far did you have to travel from home to the hospital?

Miles/km (depending on country):

2c. If you are travelling by public transport, how much does the return trip to hospital cost you?

Pounds/Swedish crowns (kronor):

B) Questions for the patient to be answered before receiving the infusion at home at each cycle. The home care nurse can help the patient to answer these questions.

1. After your last chemotherapy, did you have any unplanned visits to the Accident and Emergency (A&E) department?

Yes/No/Unknown

If yes, how many?

1 2 3 4 ≥5

2. After your last chemotherapy, did you require any unplanned visits to your specialist (oncologist, pulmonologist, etc.)?

Yes/No/Unknown

If yes, how many?

1 2 3 4 ≥5

3. After your last chemotherapy, did you require any unplanned visits to your general practitioner (GP) or family doctor?

Yes/No/Unknown

If yes, how many?

1 2 3 4 ≥5

4. After your last chemotherapy, did you require any unplanned diagnostic procedures?

Yes/No/Unknown

If yes, which ones?

Brain MRI

Brain CT scan

PET scan

Chest radiography

Bone scintigraphy

Other (specify):

C) Questions for the patient to be answered after receiving the infusion at home at each cycle

1. How long did the whole process take, from the time the nurse arrived until the time the nurse left your home?

Hours: Minutes:

D) Questions for the caregiver to be answered after the infusion at the hospital

1. How much additional time have you taken off work or for other duties related to infusion at the hospital?

Days: Hours: Minutes:

E) Questions for the caregiver to be answered after the infusion at home at each cycle

1. How much additional time have you taken off work or for other duties related to infusion at home?

Days: Hours: Minutes:

F) Questions for the home care nurse

1. To be answered after the infusion at home at each cycle

a. How long did the whole process take, from the time you left the hospital to the time you got to the patient’s home?

Hours: Minutes:

b. How long did the whole process take, from the time you arrived at the patient’s home until the time you left patient’s home?

Hours: Minutes:

2. To be answered only during the first infusion administered at home.

How far did you have to travel from hospital to the patient’s home?

Miles/km: