Table 4 Linking patient descriptions of the impact of PAH to LPH items
Impact* | LPH item(s) assessing concept |
|---|---|
Activities of daily living | Â |
Jobs around the home (n=36) | 4. making it difficult to work around the house or in the garden? |
Gardening (n=29) | 5. making it difficult to go anywhere away from home? |
Personal care (n=21) | Â |
Doing shopping (n=15) | Â |
Driving (n=11) | Â |
Caring for children (n=6) | Â |
Laundry (n=6) | Â |
Vacuuming (n=6) | Â |
Looking after animals (n=5) | Â |
Cognitive impacts | Â |
Memory (n=26) | 20. making it difficult for you to concentrate or remember things? |
Concentration (n=24) | Â |
Focus (n=6) | Â |
Motivation (n=5) | Â |
Emotional impacts | Â |
Worry (n=32) | 19. making you worry? |
Depression (n=28) | 21. making you feel depressed? |
Worried about future of PAH (n=18) | Â |
Upset (n=9) | Â |
Angry (n=8) | Â |
Fear (n=8) | Â |
Feeling low (n=7) | Â |
Stress (n=6) | Â |
Frustration (n=5) | Â |
Physical impact | Â |
Climbing stairs (n=37) | 2. making you sit or lie down to rest during the day? |
Walking (n=36) | 3. making it difficult to walk about or climb stairs? |
Exercise/sports (n=34) | 4. making it difficult to work around the house or in the garden? |
Leisure activities (n=33) | 5. making it difficult to go anywhere away from home? |
Carrying things (n=23) | 7. making it difficult to have relationships or do things with your friends or family? |
Lifting (n=17) | 9. making your recreational pastimes, sports or hobbies difficult? |
Bending (n=8) | Â |
Physical movement (n=6) | Â |
Pregnancy (n=5) | Â |
Control of own life (n=26) | 18. making you feel a loss of self-control in your life? |
Impact on relationships | Â |
Relationships with friends and family (n=29) | 7. making it difficult to have relationships or do things with your friends or family? |
Sexual activities (n=26) | 10. making your sexual activities difficult? |
Doing things with friends and family (n=21) | 17. making you feel you are a burden to your family or friends? |
Having to rest during the day | Â |
Rest during the day (n=35) | 2. making you sit or lie down to rest during the day? |
Rest during activities (n=20) | Â |
Rest after activities (n=10) | Â |
Impact on sleep | Â |
Problems with sleep (n=22) | 2. making you sit or lie down to rest during the day? |
Problems getting to sleep (n=11) | 6. making it difficult to sleep well at night? |
Quality of sleep (n=9) | Â |
Problems staying asleep (n=8) | Â |
Position of sleep (n=5) | Â |
Social impact | Â |
Social isolation (n=11) | 7. making it difficult to have relationships or do things with your friends or family? |
Lack of support and recognition of symptoms by friends and relatives (n=11) | 17. making you feel you are a burden to your family or friends? |
Socializing (n=7) | Â |
General social impact (n=6) | Â |
Treatment impact | 16. giving you side effects from treatments? |
Treatments intrusive and burdensome (n=10) | 15. costing you money for medical care? |
Work impact (n=28) | 8. making it difficult to work to earn a living? |
Positive impacts | Â |
Support from friends and family (n=14) | 7. making it difficult to have relationships or do things with your friends or family? |
Impact on eating/diet (n=31) | 11. making you eat less of the things you like? |
Impact on going out | Â |
Going out of the house (n=25) | 5. making it difficult to go anywhere away from home? |
Travel (n=18) | Â |
Preventing from going out (n=10) | Â |
Going on vacation (n=7) | Â |
Impact on others | Â |
Burden to others (n=20) | 7. making it difficult to have relationships or do things with your friends or family? |
Dependence on others (n=10) | 17. making you feel you are a burden to your family or friends? |
Impact on husband or wife (n=9) | Â |
Needing support (n=9) | Â |
Impact on family (n=6) | Â |
Financial impact | 15. costing you money for medical care? |
High cost of medication (n=20) | Â |