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Table 3 Linking patient descriptions of PAH symptoms to LPH items

From: Development and validation of the living with pulmonary hypertension questionnaire in pulmonary arterial hypertension patients

Symptom*

LPH item(s) assessing concept

Shortness of breath (n=32)

12. making you short of breath?

Difficulty breathing (n=15)

Tiredness (n=34)

13. making you tired, fatigued or lacking energy?

Fatigue (n=16)

Exhaustion (n=14)

2. making you sit or lie down to rest during the day?

Weak (n=7)

Swelling in the ankles or legs (edema) (n=31)

1. causing swelling in your ankles, legs?

Dizziness (n=13)

No item to assess this symptom

Fainting spells (n=7)

Palpitations (n=6)

No item to assess this symptom

Headache (n=9)

No item to assess this symptom

Problems with limbs (n=7)

No item to assess this symptom

  1. * Symptoms reported by 5 or more patients.