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Table 4 Associations between parents SWLS and factors concerning the families and the children

From: Health-related quality of life for children with rare diagnoses, their parents’ satisfaction with life and the association between the two

 

Independent variable

Univariat regresion

Multiple regresion

  

Coeffecient (95% CI)

p-value

Coefficient (95% CI)

p-value

Totale sample (N = 209)

PedsQL Parent report

    

  Physical functioning

0.9 (0.6 to 1.1)

< 0.001

−0.4 (−0.8 to 0.06)

0.093

  Emotional functioning

1.6 (1.1 to 2.0)

< 0.001

  

  Social functioning

1.2 (0.9 to 1.6)

< 0.001

0.7 (0.2 to 1.3)

0.002

  School functioning

1.6 (1.3 to 2.0)

< 0.001

1.3 (0.8 to 1.8)

< 0.001

Child gender

4.8 (−13.7 to 23.2)

0.612

  

Child age

−1.5 (−4.2 to 1.3)

0.293

  

Lives with both parents

28.2 (4.8 to 51.6)

0.019

  

Other with health problems in family

−45.9 (−64.1 to −27.7)

< 0.001

−36.5 (−53.2 to −20.0)

< 0001

Mother work 50% or more

−29.8 (−49.6 to −9.9)

0.003

  

Mother education level >12 years

19.5 (0.8 to 38.3)

0.042

  

Father education level >12 years

29.9 (11.4 to 48.4)

0.002

  

CLD (N = 67)

PedsQL Parent report

    

  Physical functioning

1.2 (0.6 to 1.9)

< 0.001

−0.4 (−1.5 to 0.7)

0.482

  Emotional functioning

1.6 (0.7 to 2.4)

0.001

−0.3 (−1.5 to 0.8)

0.565

  Social functioning

1.6 (1.0 to2.2)

< 0.001

1.2 (0.04 to 2.4)

0.057

  School functioning

2.0 (1.3 to 2.7)

< 0.001

1.5 (0.3 to 2.7)

0.015

Child gender

19.7 (−12.3 to 51.7

0.223

  

Child age

2.1 (−2.6 to 6.7)

0.381

  

Lives with both parents

16.9 (−29.4 to 63.2

0.468

  

Other with health problems in family

−20.5 (−57.9 to 16.8)

0.276

  

Mother work 50% or more

−22.0 (−61.0 to 16.9)

0.263

  

Mother education level >12 years

23.6 (−10.2 to 57.4)

0.168

  

Father education level >12 years

29.9 (−3.1 to 63.0)

0.075

  

MMC (N = 42)

PedsQL Parent report

    

  Physical functioning

0.8 (0.02 to 1.6)

0.044

−0.1 (−1,2 to1,0)

0,906

  Emotional functioning

1.2 (0.1 to 2,3)

0.034

−0.2 (−2.1 to1.7)

0.821

  Social functioning

1.2 (0.3 to 2.1)

0.013

0.3 (−1.5 to 2.0)

0.768

  School functioning

1.4 (0.6 to 2.2 )

0.001

1.4 (−0.1 to 2.9)

0.067

Child gender

−29.2 (−66.0 to 7.7)

0.117

  

Child age

−1.5 (−7.4 to 4.5)

0.620

  

Lives with both parents

−19.4 (−81.8 to 42.9)

0.532

  

Other with health problems in family

−15.4 (−54.5 to 23.7)

0.431

  

Mother work 50% or more

−8.3 (−49.3 to 32.6)

0.683

  

Mother education level >12 years

−36.4 (−73.2 to 0.3)

0.052

  

Father education level >12 years

40.6 (−36.8 to 44.9)

0.841

  
  1. Note: Child gender: girls = 1 and boys =2, lives with both parents: 0 = no and 1 = yes, other with health problems in family: no = 0 and yes = 1, mothers employment level: work 50% or more = 1 and work less than 50% = 2, education level: ≤ 12 years = 1and > 12 years = 2.