Skip to main content

Table 2 PedsQL scores reported by parents compared with PedsQL scores of Norwegian school children (Nsc)

From: Health-related quality of life for children with rare diagnoses, their parents’ satisfaction with life and the association between the two

  

Physical functioning

Emotional functioning

Social functioning

School functioning

 

 N

Mean (SD)

ES (p-value)

Mean (SD)

ES (p-value)

Mean (SD)

ES (p-value)

Mean (SD)

ES (p-value)

Nsc

419

88. 8 (11.8)

 

80.0 (14.1)

 

88.1 (13.4)

 

89.0 (12.3)

 

Total study sample

209

59.6 (27.2)

2.42 (< 0.001)

71.8 (18,8)

0.58 (< 0.001)

68.8 (22.7)

1.45 (< 0.001)

69.4 (21.1)

1.59 (< 0.001)

CLD

67

77.3 (23.6)

1.00 (< 0.001)

78.5 (17.3)

0.11 (0.477)

80.5 (23.0)

0.57 (0.012)

80.3 (18.6)

0.71 (< 0.001)

AMC

17

47.1 (27.0)

3.53 (< 0.001)

72.7 (20.4)

0.52 (0.186)

61.7 (20.9)

1.97 (< 0.001)

69.7 (23.6)

1.57 (0.007)

MFS

11

73.1 (12.7)

1.33 (0.003)

71.8 (19.1)

0.58 (0.187)

68.6 (13.8)

1.46 (0.001)

66.4 (23.6)

1.84 (0.010)

EDS

21

52.4 (23.3)

3.08 (< 0.001)

59.0 (20.8)

1.49 (< 0.001)

66.0 (23.3)

1.65 (< 0.001)

56.9 (15.3)

2.61 (< 0.001)

ShSt

28

51.2 (21.0)

3.19 (< 0,001)

70.7 (17.1)

0.66 (0,009)

61.9 (18.9)

1.96 (< 0,001)

69.3 (17.7)

1.60 (< 0.001)

OI

23

53.9 (28.6)

2.92 (< 0,001)

73.4 (19.0)

0.47 (0.118)

68.0 (20.7)

1.50 (< 0.001)

71.4 (18.9)

1.43 (< 0.001)

MMC

42

44.5 (24.1)

3.67 (< 0.001)

67.1 (16.7)

0.91 (< 0.001)

59.3 (20.8)

2.20 (< 0.001)

58.4 (21.5)

2.50 (< 0.001)

  1. Note: Some missing values but less than 13% for all variables (Additional file 1: Table S4).