Table 1 Socio-demographic and clinical characteristics of the total study sample and the individual diagnostic groups
Characteristics | Total study sample (N = 209) | CLD (N = 67) | AMC (N = 17) | MRF (N = 11) | EDS (N = 21) | ShSt (N = 28) | OI (N = 23) | MMC (N = 42) |
|---|---|---|---|---|---|---|---|---|
Parents | ||||||||
Education level | ||||||||
Mothers >12 years, number (%) | 111 (53) | 40 (62) | 6 (35) | 5 (45) | 9 (43) | 19 (68) | 9 (39) | 23 (56) |
Fathers >12 years, number (%) | 98 (47) | 37 (58) | 3 (21) | 7 (64) | 10 (50) | 15 (54) | 7 (30) | 19 (49) |
Employment status | ||||||||
Mother work 50% or more, number (%) | 144 (69) | 52 (78) | 12 (71) | 7 (64) | 7 (33) | 22 (79) | 14 (61) | 30 (71) |
Father work 50% or more, number (%) | 184 (88) | 63 (94) | 13 (76) | 8 (73) | 18 (90) | 25 (89) | 19 (83) | 38 (91) |
Other with health problems in family, number (%) | 77 (37) | 17 (25) | 5 (29) | 7 (64) | 15 (71) | 11 (39) | 8 (35) | 14 (33) |
Children | ||||||||
Girls, number (%) | 104 (50) | 28 (42) | 9 (53) | 6 (55) | 11 (52) | 15 (54) | 13 (57) | 23 (55) |
Age, mean (SD) | 12 (34) | 11 (35) | 12 (34) | 14 (32) | 13 (32) | 10 (35) | 12 (32) | 11 (32) |
School level, number (%) | ||||||||
Grade 1–6, number (%) | 103 (49) | 37 (55) | 6 (35) | 2 (18) | 6 (29) | 18 (64) | 11 (48) | 23 (55) |
Grade 7–10, number (%) | 78 (37) | 22 (33) | 9 (53) | 7 (64) | 8 (38) | 7 (25) | 10 (43) | 15 (36) |
Grade 11–13 number (%) | 27 (13) | 8 (12) | 2 (12) | 2 (18) | 7 (33) | 3 (11) | 2 ( 9) | 3 (7) |
Living with both parents, number (%) | 171 (82) | 58 (87) | 10 (59) | 7 (64) | 15 (71) | 24 (86) | 19 (83) | 38 (91) |
Manual and/or electric wheel chair, number (%) | 80 (38) | 7 (10) | 10 (59) | 1 (9) | 3 (14) | 15 (54) | 9 (39) | 35 (83) |
Absence from school last year >10 days, number (%) | 61 (29) | 7 (11) | 5 (29) | 0 | 9 (43) | 7 (25) | 12 (52) | 21 (50) |