Table 3 Carer experiences of health and social care
| Â | MND | MS | PD | Â |
|---|---|---|---|---|
Items | n (%) | n (%) | n (%) | p |
Did not have a carer assessment but would have liked one | 113 (26.5) | 158 (22.2) | 154 (20.8) | NS |
No/ not enough opportunity to discuss amount of caring with a health or social professional | 242 (56.5) | 556 (77.7) | 525 (71.1) | <0.001 |
Not involved in care planning as much as the caregiver would like | 187 (43.6) | 345 (48.6) | 324 (44.4) | NS |
Caring experiences not valued enough by health and social services | 129 (30.2) | 324 (45.5) | 243 (33.3) | <0.001 |
Not been able to take a break from caring | 38 (8.9) | 62 (8.8) | 84 (11.3) | NS |
Did not receive all the necessary equipment from health and social services | 83 (20.0) | 102 (14.7) | 114 (16.0) | NS |
Have not had enough help from health and social services with personal care of the patient | 110 (26.6) | 123 (18.2) | 138 (19.5) | 0.002 |
Have not had enough help from health and social services with household duties | 103 (25.2) | 167 (24.2) | 163 (23.1) | NS |
Have not had enough help from health and social services with health care | 73 (18.0) | 96 (14.4) | 109 (15.6) | NS |
Have not had enough help from health and social services with physical care | 131 (32.1) | 149 (21.8) | 163 (23.6) | <0.001 |
Do not receive financial support from health and social services, but would like some | 95 (22.5) | 159 (23.2) | 125 (17.6) | 0.023 |
Had difficulty with obtaining financial support from health and social services | 113 (27.2) | 141 (20.7) | 116 (16.8) | <0.001 |