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Table 3 Carer experiences of health and social care

From: Carer quality of life and experiences of health services: a cross-sectional survey across three neurological conditions

  MND MS PD  
Items n (%) n (%) n (%) p
Did not have a carer assessment but would have liked one 113 (26.5) 158 (22.2) 154 (20.8) NS
No/ not enough opportunity to discuss amount of caring with a health or social professional 242 (56.5) 556 (77.7) 525 (71.1) <0.001
Not involved in care planning as much as the caregiver would like 187 (43.6) 345 (48.6) 324 (44.4) NS
Caring experiences not valued enough by health and social services 129 (30.2) 324 (45.5) 243 (33.3) <0.001
Not been able to take a break from caring 38 (8.9) 62 (8.8) 84 (11.3) NS
Did not receive all the necessary equipment from health and social services 83 (20.0) 102 (14.7) 114 (16.0) NS
Have not had enough help from health and social services with personal care of the patient 110 (26.6) 123 (18.2) 138 (19.5) 0.002
Have not had enough help from health and social services with household duties 103 (25.2) 167 (24.2) 163 (23.1) NS
Have not had enough help from health and social services with health care 73 (18.0) 96 (14.4) 109 (15.6) NS
Have not had enough help from health and social services with physical care 131 (32.1) 149 (21.8) 163 (23.6) <0.001
Do not receive financial support from health and social services, but would like some 95 (22.5) 159 (23.2) 125 (17.6) 0.023
Had difficulty with obtaining financial support from health and social services 113 (27.2) 141 (20.7) 116 (16.8) <0.001