Table 8 Examples of items and agreement rates in patient rating phase
Item no. | Subscale | Example (*) | A (%) | B (%) | Final Decision |
|---|---|---|---|---|---|
33 | General Health | To what extent have you been prevented from using other treatments (ACE antihypertensives, oral contraception, …) due to HAE? | 75% | 100% | Modified (QC also taken into account) |
41 | Mental Health | To what extent have you felt at ease after obtaining the HAE diagnosis? | 87.5% | 93.75% | Removed based on QC |
23 | Physical Role | How often have you missed work or school/classes because of an angioedema attack? | 100% | 100% | Maintained |
26 | Aesthetics | To what extent have you been affected by the impact of secondary adverse events of attenuated androgens treatment in your physical appearance? | 68.75% | 100% | Modified |
6 | Health Conditions | To what extent have you been affected by the need to get to a health care center to receive medication for acute attacks? | 81.25% | 93.75% | Modified based on QC |
17 | Social Role | To what extent has this disease affected you in terms of taking trips or traveling? | 100% | 100% | Maintained |