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Table 6 Characteristics and Severity Score of participating HAE-C1-INH patients (convenience representative sample)

From: Development of a disease-specific quality of life questionnaire for adult patients with hereditary angioedema due to C1 inhibitor deficiency (HAE-QoL): Spanish multi-centre research project

 

Semi-structured interview phase

Patient rating phase

N° patients

45

16

Sex

29 women/16 men

8 women/8 men

Age

18-74 years old (mean age 39)

23-55 years old (mean age 37.4)

Severity Score

Asymptomatic

2

-

Mild

5

4

Moderate

10

5

Severe

28

7