Table 4 Examples of significant units ( verbatims ) and items
Significant units (Verbatims) | Domains | Item* |
|---|---|---|
“Few doctors know about my disease” | Health conditions | How often have you felt that health professionals do not know about your disease? |
“I am worried about transmitting the disease to my children” | Emotional role | How much do you worry about the transmission of the disease to your children? |
“I feel insecure when traveling, due to the unavailability of C1 inhibitor concentrate” | Social role | How has your disease limited your traveling? |
“The truth is that I am always frightened” | Mental Health | To what extent does your disease make you feel anxious or fearful? |
“I am worried about the adverse side effects of medication” | Treatment | How much are you worried about the adverse side effects of treatment? |
“An important aspect that is affected is work. Attacks are more frequent at exam time” | Physical role | How has your disease affected your work or studies during the last six months? |
“Barrier to regulating menstruation” | General Health | Have you had problems in receiving adequate treatment for other diseases (drugs for arterial hypertension, oral contraceptives, and other hormonal treatments) due to hereditary angioedema? |
“When I have an attack, I cannot walk, wash or groom myself”. | Physical functioning | Have your angioedema episodes prevented you from accomplishing basic activities of daily life (washing, eating, walking, etc. ? |
“I had to give up medication because of virilization symptoms” | Aesthetics | Have you been affected by the possibility of suffering changes in your physical appearance due to the side effects of attenuated androgens? |