Table 3 Qualitative interviewing: semi-structured questions answered in interviews with HAE-C1-INH patients and experts
Questions for HAE-C1-INH patients | |
|---|---|
1 | Without using medical or technical terms, how would you describe your disease? |
2 | Name the five aspects of your life that are most important to you. |
1 | Of the aspects you have mentioned, which one is the most affected by your disease at this time? |
2 | What bothers you most about your disease? |
3 | What worries you most about your disease? |
4 | What has made you feel upset, pensive or annoyed in relation to your disease? |
5 | In what ways does your disease limit you? |
6 | Is there anything else that you would like to add about your disease? |
Questions for HAE-C1-INH experts: | |
1 | Without using medical or technical terms, how would you describe HAE-C1-INH? |
2 | Name the five aspects of life that in your opinion are the most important for a HAE-C1-INH patient. |
3 | Of the aspects you have mentioned, which one is the most affected by HAE-C1-INH? |
4 | In your opinion, what aspect of the disease most bothers a HAE-C1-INH patient? |
5 | What do you think most worries a HAE-C1-INH patient about his/her disease? |
6 | What do you think makes a HAE-C1-INH patient feel upset, pensive or annoyed in relation with his/her disease? |
7 | In what ways does the disease limit a HAE-C1-INH patient? |
8 | Is there anything else that you would like to add about HAE-C1-INH? |