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Table 3 Description of patient samples including completes and non-completes

From: The multiple sclerosis rating scale, revised (MSRS-R): Development, refinement, and psychometric validation using an online community

  Baseline (4,382 eligible) 1-Week Retest (391 eligible)
  Non-Completes Completes Sig. Non-Completes Completes Sig.
N of cases 3566 816   199 192  
Sex       
 Female (%) 2715 (76.1) 619 (75.9) X2 = 15.25 151 (75.9) 144 (75.0) X2 = 2.22
 Male (%) 622 (17.4) 170 (20.8) df = 2 42 (21.1) 46 (24.0) df = 2
 Not ascertained (%) 229 (6.4) 27 (3.3) p < .001 5 (2.0) 2 (1.0) p = .329
Age in years       
 Mean (SD) 42.9 (9.9) 45.9 (9.8) t = 7.61 45.5 (9.9) 46.5 (9.5) t = .989
 Median (IQR) 43.0 (36–50) 47.0 (39–53) df = 4,102 45.0 (38–53) 46.0 (40–53) df = 377
 Range 15 - 81 19 - 73 p < 0.001 19 – 73 21 - 67 p = .323
 Not ascertained (%) 251 (7.0) 27 (3.3)   9 (4.5) 3 (1.6)  
Years since MS diagnosis       
 Mean (SD) 6.5 (6.2) 6.6 (6.6) t = .79 5.7 (7.7) 6.7 (6.3) t = −.106
 Median (IQR) 4.0 (2–9) 4.0 (2–9) df = 4,326 4.0 (2–9) 5.0 (2–9.8) df = 388
 Range 0 - 39 0 - 52 p = .430 0 - 52 0 - 37 p = .916
 Not ascertained (%) 50 (1.4) 4 (0.5)   1 (0.5%) 0 (0.0)  
Number (%) of reported relapses in previous 2 years      
 0 2440 (68.4) 471 (57.7) X2 = 53.82 119 (59.8) 108 (56.2) X2 = 6.14
 1 719 (20.2) 182 (22.3) df = 4 45 (22.5) 44 (22.9) df = 4
 2 216 (6.1) 85 (10.4) p < 0.001 20 (10.1) 15 (7.8) p = .189
 3 106 (3.0) 35 (4.3)   5 (2.5) 15 (7.8)  
 4 or more 85 (2.4) 43 (5.3)   10 (5.0) 10 (5.2)  
PDDS group (%)       
 normal n/a 189 (23.2) n/a 46 (23.1) 42 (21.9) X2 = 4.55
 mild disability n/a 107 (13.1)   26 (13.1) 26 (13.5) df = 4
 moderate or gait disability n/a 242 (29.7)   60 (30.2) 46 (24.0) p = .225
 early cane n/a 143 (17.5)   35 (17.6) 32 (16.7)  
 late cane, bilateral support, wheelchair, or bedridden n/a 135 (16.5)   32 (16.1) 46 (24.0)  
Most recently entered profile MSRS (%)      
 not ascertained 314 (8.8) 25 (3.1) X2 = 47.515 11 (5.5) 1 (0.5) X2 = 10.24
 0 to 9 341 (9.6) 84 (10.3) df = 7 24 (12.1) 25 (13.0) df = 7
 10 to 19 511 (14.3) 126 (15.4) p < 0.001 23 (11.6) 31 (16.1) p = .175
 20 to 29 544 (15.3) 131 (16.1)   28 (14.1) 28 (14.6)  
 30 to 39 677 (19.0) 132 (16.2)   33 (16.6) 33 (17.2)  
 40 to 49 413 (11.6) 87 (10.7)   20 (10.1) 16 (8.3)  
 50 to 59 417 (11.7) 134 (16.4)   33 (16.6) 35 (18.2)  
 60 or higher 97 (11.9) 97 (11.9)   27 (13.6) 23 (12.0)