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Table 3 Description of patient samples including completes and non-completes

From: The multiple sclerosis rating scale, revised (MSRS-R): Development, refinement, and psychometric validation using an online community

 

Baseline (4,382 eligible)

1-Week Retest (391 eligible)

 

Non-Completes

Completes

Sig.

Non-Completes

Completes

Sig.

N of cases

3566

816

 

199

192

 

Sex

      

 Female (%)

2715 (76.1)

619 (75.9)

X2 = 15.25

151 (75.9)

144 (75.0)

X2 = 2.22

 Male (%)

622 (17.4)

170 (20.8)

df = 2

42 (21.1)

46 (24.0)

df = 2

 Not ascertained (%)

229 (6.4)

27 (3.3)

p < .001

5 (2.0)

2 (1.0)

p = .329

Age in years

      

 Mean (SD)

42.9 (9.9)

45.9 (9.8)

t = 7.61

45.5 (9.9)

46.5 (9.5)

t = .989

 Median (IQR)

43.0 (36–50)

47.0 (39–53)

df = 4,102

45.0 (38–53)

46.0 (40–53)

df = 377

 Range

15 - 81

19 - 73

p < 0.001

19 – 73

21 - 67

p = .323

 Not ascertained (%)

251 (7.0)

27 (3.3)

 

9 (4.5)

3 (1.6)

 

Years since MS diagnosis

      

 Mean (SD)

6.5 (6.2)

6.6 (6.6)

t = .79

5.7 (7.7)

6.7 (6.3)

t = −.106

 Median (IQR)

4.0 (2–9)

4.0 (2–9)

df = 4,326

4.0 (2–9)

5.0 (2–9.8)

df = 388

 Range

0 - 39

0 - 52

p = .430

0 - 52

0 - 37

p = .916

 Not ascertained (%)

50 (1.4)

4 (0.5)

 

1 (0.5%)

0 (0.0)

 

Number (%) of reported relapses in previous 2 years

     

 0

2440 (68.4)

471 (57.7)

X2 = 53.82

119 (59.8)

108 (56.2)

X2 = 6.14

 1

719 (20.2)

182 (22.3)

df = 4

45 (22.5)

44 (22.9)

df = 4

 2

216 (6.1)

85 (10.4)

p < 0.001

20 (10.1)

15 (7.8)

p = .189

 3

106 (3.0)

35 (4.3)

 

5 (2.5)

15 (7.8)

 

 4 or more

85 (2.4)

43 (5.3)

 

10 (5.0)

10 (5.2)

 

PDDS group (%)

      

 normal

n/a

189 (23.2)

n/a

46 (23.1)

42 (21.9)

X2 = 4.55

 mild disability

n/a

107 (13.1)

 

26 (13.1)

26 (13.5)

df = 4

 moderate or gait disability

n/a

242 (29.7)

 

60 (30.2)

46 (24.0)

p = .225

 early cane

n/a

143 (17.5)

 

35 (17.6)

32 (16.7)

 

 late cane, bilateral support, wheelchair, or bedridden

n/a

135 (16.5)

 

32 (16.1)

46 (24.0)

 

Most recently entered profile MSRS (%)

     

 not ascertained

314 (8.8)

25 (3.1)

X2 = 47.515

11 (5.5)

1 (0.5)

X2 = 10.24

 0 to 9

341 (9.6)

84 (10.3)

df = 7

24 (12.1)

25 (13.0)

df = 7

 10 to 19

511 (14.3)

126 (15.4)

p < 0.001

23 (11.6)

31 (16.1)

p = .175

 20 to 29

544 (15.3)

131 (16.1)

 

28 (14.1)

28 (14.6)

 

 30 to 39

677 (19.0)

132 (16.2)

 

33 (16.6)

33 (17.2)

 

 40 to 49

413 (11.6)

87 (10.7)

 

20 (10.1)

16 (8.3)

 

 50 to 59

417 (11.7)

134 (16.4)

 

33 (16.6)

35 (18.2)

 

 60 or higher

97 (11.9)

97 (11.9)

 

27 (13.6)

23 (12.0)