Table 3 Items Caregivers Reported Feeling Uncomfortable Answering

Asthma Impact Items

My child's chest felt tight because of asthma.

"...she has never said anything directly to me so I had to guess"

My child got tired easily because of his/her asthma.

" I don't see her at school when she would be running around"

My child's body felt bad when he/she was out of breath.

" I don't know how his body felt, son didn't tell me how his body felt."

Emotional Distress Items

My child worried about what could happen to him/her.

"My child doesn't always share his emotions with me."

My child got scared really easily.

"It is harder to ascertain my child's feelings"

My child felt alone.

"This was hard to answer because if she didn't tell me I wouldn't know."

My child was worried when he/she was away from home.

"It's not so much the wording it's that you're asking me to report something that I don't know"

Being sad made it hard for my child to do things with friends.

"I couldn't relate to questions about my child's feelings because I have no idea."

Fatigue Items

My child was so tired it was hard for him/her to pay attention.

" I just answered to the best I could. I'm not always there when she would need to pay attention like at school"

Pain Items

It was hard for my child to think when he/she had pain.

"I cannot measure/gage if he can think when he has pain as he may not tell me"

It was hard for my child to remember things when he/she had pain.

"I don't know what he's thinking when he has pain."

Social Role Relationship Items

My child was good at making friends.

"The friends piece comes at school and I'm not there"

It was hard for my child to make friends.

"I have no idea about things that occur at school or after- school that I can't see. These are questions about things that I haven't seen with my own eyes."

Other kids teased my child.

"I'm not at school to see this"

Other kids did not want to be my child's friend.

"These are things that are internal that I can't see as a parent"

Other kids bullied my child.

"... if he doesn't talk about it or I don't see it happen... then I don't know""

My child was good at making friends.

"Anything that I'm able to observe is a lot easier to answer (vs. questions about how my child feels)."

My child felt accepted by other kids his/her age.

"I don't have a gauge to know how he felt. I have to guess"

Other kids did not want to be my child's friends.

"Some questions were harder due to difficulty knowing how to answer on behalf of child's experience "

My child was able to have fun with his/her friends.

"this question was a little harder-I had to think about whether she had fun since I'm not always with her"

My child was able to count on his/her friends.

"I had to think again about what she has told me."

My child treated other kids his/her age with respect.

"This was a little harder to answer- because I'm not around her when she's around other kids."

Other kids did not like my child.

"This was harder to answer because I am not around my child at school."

My child felt nervous when he/she was with other kids the same age.

"I'm not sure what she is like when she is around other kids."

Other kids wanted to be with my child.

"This is hard to answer because I'm not around her during the school day."

Other kids wanted to be my child's friend

"With an older teenager it's a little more difficult to know."

Other kids were mean to my child.

"It depends on whether the child tells the parents or if I observed it directly."

My child teased other kids.

"It was impossible to know about other kids since I wasn't there."

My child played alone and kept to himself/herself.

"I thought of it as "at our house". Because in school, Sunday school, etc. I do not have the foggiest idea."