Preliminary development and psychometric evaluation of an unmet needs measure for adolescents and young adults with cancer: the Cancer Needs Questionnaire - Young People (CNQ-YP)

Clinton-McHarg, Tara; Carey, Mariko; Sanson-Fisher, Rob; D'Este, Catherine; Shakeshaft, Anthony

doi:10.1186/1477-7525-10-13

Table 2 Factor structure of the CNQ-YP from the revised factor analysis

From: Preliminary development and psychometric evaluation of an unmet needs measure for adolescents and young adults with cancer: the Cancer Needs Questionnaire - Young People (CNQ-YP)

Item number		Description of item	Factor loading
			Factor 1	Factor 2	Factor 3	Factor 4	Factor 5	Factor 6
Factor 1 - Treatment Environment and Care (n = 116)
Cancer treatment staff telling me:	1	about my diagnosis	0.76
	2	what might happen during treatment	0.77
	4	whether I had the option to decline treatment	0.54
	5	about the short-term side-effects of treatment	0.73
	6	about the long-term side-effects of treatment	0.65
	7	my chances of a full recovery	0.78
	8	what would happen when treatment finished	0.71
	9	whether I would be able to have children	0.60
	12	whether my treatment was working	0.87
	13	my test results as soon as possible	0.87
	14	the way I felt was normal	0.80
	15	how to manage my medication	0.82
	16	what I could do to stay healthy	0.67
	17	what to do if I noticed a particular side-effect	0.74
Having cancer treatment staff who:	20	listened to my concerns	0.89
	21	treated me as an individual	0.87
	22	were respectful	0.93
	23	were approachable	0.91
	24	were friendly	0.91
	25	could have a laugh with me	0.90
	26	explained what they were doing	0.89
	27	spoke to me in a way that I could understand	0.90
	28	let me talk about my feelings	0.77
	29	let me ask questions	0.90
	30	let me make decisions about my treatment	0.74
	31	talked to me in private, without my family	0.66
Being able to have:	39	time to myself	0.55
	41	privacy	0.51
	42	pleasant surroundings	0.52
	43	good food	0.45
	46	a choice of cancer specialists	0.64
	47	the same cancer staff throughout treatment	0.63
	48	a choice of times for appointments	0.64
Factor 2 - Daily Life (n = 116)
Being able to:	110	make plans or think about the future		0.51
Coping with:	102	changes in my physical ability		0.68
	103	changes in my appearance		0.69
	107	not being able to do the same things as other people my age		0.75
	117	my parent/s being over-protective		0.49
Managing:	134	pain		0.65
	135	medication		0.48
	136	physical side-effects of treatment		0.76
	137	feeling tired		0.72
	138	loss of mobility		0.65
	142	to take part in social activities		0.71
	143	to travel to social events		0.67
Factor 3 - Feelings and Relationships (n = 116)
Feeling:	84	frustrated			0.56
	86	anxious or nervous			0.73
Worrying about:	91	my cancer spreading			0.76
	92	my cancer returning			0.66
	93	whether my cancer treatment has worked			0.68
	95	having cancer treatment			0.70
	97	how my family is coping			0.68
Finding:	98	inner strength			0.66
Being able to:	112	accept my diagnosis			0.60
	113	be independent			0.51
Coping with:	125	changes in my relationship with my partner			0.53*
	131	changes in my relationships with my sibling/s			0.59*
Knowing how to:	132	ask my sibling/s for support			0.51*
	133	give support to my sibling/s			0.52*
Factor 4 - Information and Activities (n = 116)
Being able to:	37	spend time with people my own age				0.44
	38	talk to people my age who had been through a similar experience				0.69
Being able to have:	44	leisure spaces and activities				0.45
Finding information that:	75	was specifically designed for me				0.61
	81	described relaxation techniques				0.54
Factor 5 - Education (n = 65)
Being able to:	56	attend classes					0.69
	58	get extensions or special consideration					0.74
	59	get guidance about study options or future career paths					0.56
Factor 6 - Work (n = 90)
Knowing:	71	how much work I would miss						0.67
	72	how to ask managers/co-workers for support						0.78
	74	that managers/co-workers had support to help them cope						0.76
% of Total Variance			31%	13%	11%	8%	n/a	n/a

*AYAs only completed these items if relevant to their situation. Item 125 was completed by n = 54 participants, Items 131, 132 and 133 were completed by n = 96 participants. These items do not form part of the total variance explained.

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ISSN: 1477-7525

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