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Table 1 Discussion guide

From: Preterm children quality of life evaluation: a qualitative study to approach physicians’ perception

Main themes

Sub- themes

Associated questions

Questions of relaunching

HRQoL* representation

Perception

What does the HRQoL concept evoke for each of you?

What do you think about HRQoL and well-being measurements?

  

How do you perceive this notion?

How would you define HRQoL as a concept?

   

What do you consider the important dimensions?

   

What is the time of relevance of such a concept?

 

Knowledge

What knowledge do you have of its application in the field of health?

Do you know of tools for the evaluation of HRQoL?

   

Do you think they are relevant? Which one? Why?

 

Experience

What experience do you have with it in your practice?

Have you ever participated in a study of HRQoL?

   

Have you already used a HRQoL questionnaire in your practice? Why? How?

   

Do you assess the HRQoL of your patients? How? Why?

Expectations in daily practice of such a concept in extremely preterm children

Interests

What is your interest in the HRQoL concept?

What is the utility of its evaluation in your specific practice?

   

What are the interests of the medical community towards such data?

   

How could HRQoL evaluation change the way your practice for your patients?

 

Limitations

What are the limitations of this concept and its evaluation?

Do you think that a standardised evaluation could potentially damage your intuitive evaluation of the well-being of your patients?

HRQoL evaluation

HRQoL evaluation in daily practice

Do you think every patient should be evaluated?

How could HRQoL assessment become a tool integrated into the care of preterm children in your daily practice?

  

How could you use HRQoL evaluation in daily practice?

 
  

When do you think it would be important to make this evaluation?

What effects and consequences could its evaluation have in your relationship with your patients?

  

Who should assess HRQoL?

What would you make of a “bad” HRQoL evaluation?

 

Questions about the tool

What would be an ideal questionnaire?

What do you think of the existing questionnaires?

   

How would you envision a standardized evaluation: number of questions, duration, kind of notation?

   

What are the important dimensions of HRQoL to estimate?

  1. *HRQoL: Health-related quality of life.