Outcomes | Measures and Psychometrics |
---|---|
Primary Outcome | |
Anxiety | 7-item HADS-Anxiety Subscale (patients and partners) [69] (α = .68-.93) [70] |
Secondary Outcomes | |
Depression | 7-item HADS-Depression Subscale (patients and partners) [69] (α = .67-.90) [70] |
Cancer distress | 15-item Revised Impact of Event Scale (patients and partners; α = .78-.96) [71] |
Quality of Life (QOL) | 35-item Assessment of Quality of Life – 8 Dimensions Scale (AQoL-8D; patients and partners) [72] |
35-item Caregiver’s QOL Index-Cancer (partners) [73] | |
Relationship satisfaction | 7-item Spanier Dyadic Adjustment Scale (patients and partners) [74] α = .89-.95) [75] |
Appraisal | 28-item Kessler Cognitive Appraisal of Health Scale (patients and partners [adapted]; α > .70) [76] |
33-item Mishel’s Uncertainty Scale (patients and partners; α = .64-0.91) [77] | |
27-item Appraisal of Caregiving Scale (partners; α > .85) [78, 79] | |
Self-efficacy | 17-item Cancer Self-Efficacy Scale (patients and partners; α = .97) [78] |
12-item Communication and Attitudinal Self-Efficacy Scale for Cancer (CASE-Cancer; patients and partners [adapted]; α = .76-.77) [80] | |
Dyadic coping | 37-item Dyadic Coping Inventory (patients and partners; α = .63-.84) [81] |
Individual Coping | 28-item Brief COPE measures 14 individual-level coping strategies (patients and partners; α = .60-.90) [82] |
Moderators* | |
Information obtained and information-seeking preferences | 25-item EORTC Quality of Life (QOL) – information module (patients and partners; α > 0.70) [83] |
45-item Profile of Preferences for Cancer Information (PPCI) (patients and partners [adapted]) [84] | |
Readiness for self-directed learning | 39-item adapted version of the Learning Preference Scale (patients and partners [adapted]) [85] |
Problems experienced | 48-item adapted version of SupportScreen scale (patients and partners [adapted]) [86] |