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Table 1 Description of the study sample according to respondent, No. (%), n = 584 (unless indicated)

From: The proxy problem anatomized: child-parent disagreement in health related quality of life reports of chronically ill adolescents

  Adolescents Parents p*
Socio-demographic characteristics    
Gender    
Female 322 (55.1) 303 (54.7)  
Male 262 (44.9) 251 (45.3) -
Age    
12-15 371 (63.5)   
16-19 213 (36.5) - -
Mean (SD) 14.9 (1.9)   
Educational level    
Lower 326 (56.2) 338 (59.7) -
Higher 254 (43.8) 228 (40.3)  
Education type**    
Regular 526 (90.7) - -
Special 54 (9.3)   
Ethnicity    
Dutch surname 526 (90.7) - -
Non-Dutch surname 54 (9.3)   
Disease-related characteristics    
Age at diagnosis    
0-5 yrs 428 (73.3) - -
≥ 6 yrs 156 (26.7)   
Number of visits of outpatient department    
Range 1-111 - -
Mean (SD) 16.9 (15.4)   
Number of hospital admissions    
Range 0-138 - -
Mean (SD) 4.9 (9.8)   
Number of different outpatient departments    
Range 1-15 - -
Mean (SD) 3.1 (2.2)   
Consequences of chronic condition    
Presence therapeutic regimen    
Yes 378 (64.7) 386 (66.1) ns
Presence physical limitations    
Yes 165 (28.3) 133 (22.9) < .01
School/work absenteeism    
Range 1-5 1-5 ns
Mean (SD) 1.9 (.90) 1.9 (.85)  
Experienced burden    
Range 2-10 2-10 < .01
mean (SD) 4.6 (2.1) 5.2 (2.1)  
  1. * McNemar test or Paired Samples t-test to test if the reported variables differ significantly between adolescent reports and parent reports.
  2. ** n = 580